Advocacy & Information for Parents and Professionals

Empowerment

• Using Daily Routines as a Context for Intervention
  Family-guided Approaches to Collaborative Early Intervention Training and Services (FACETS)
• The Pediatrician's Role in Development and Implementation of an Individual Education Plan (IEP) and/or an Individual Family Service Plan (IFSP)
  a policy statement by the American Academy of Pediatrics, July 1999.
• Planning and Preparing for Your Child's Developmental Assessment
  article with some very good links, by the ZERO TO THREE New Visions for Parents Work Group
• Global Early Intervention Network
  Internet community for parents, service providers, students and faculty at universities, and everyone else who is concerned about early intervention with infants and toddlers. The community is dedicated to high quality information, peer support, problem-solving assistance, continuous learning, and research related to early intervention. Our hope is that this community will serve as a model for how the Internet can be used to enhance collaboration and the sharing of knowledge in early intervention.
• IFSP web
  IFSPWeb is a self-paced tutorial designed to help (Nebraska) parents and professionals create better Individual Family Service Plans (IFSPs) for young children with disabilities.
• Family Matters: The Impact of Learning Disabilities
• ISU Extension Families/CYFAR: Building Communities w/Strong Families
• Rehabilitation International
• Parent Training and Information Centers in the U.S.
  Parent centers in each state provide training and information to parents of infants, toddlers, school-aged children, and young adults with disabilities and the professionals who work with their families. This assistance helps parents participate more effectively with professionals in meeting the educational needs of children and youth with disabilities.

Ongoing Workshops/Training/Online Information

• IDA of CA (Infant Development Association of California)
• NPIN (National Parent Information Network)
• Signs of Development Home
  ASL (American Sign Language) webcourses and products
• Time To Sign
  Keynote workshops focus on how to incorporate signing in the classroom and include learning approximately 100 signs in a fun way through Music, Stories, Games and Play.
• Disabality Resolutions
  Information on Developmental Disabilities.
• SERI - Special Education Resources on the Internet
• Disability Rights Education and Defense Fund Inc.
• Parents with Disabilities online!
  information, support and resources for parents with disabilities
• Through the Looking Glass
  Information, research but also direct services for people in the Bay Area in California.
  Adaptive Parenting Equipment; Idea Book I
  (catalog describing 50 items of adaptive parenting equipment developed over the past several years) is available for purchase.
• ZERO TO THREE
  a wealth of info for parents and professionals on the first three years of life.
• ERIC Clearinghouse on Elementary and Early Childhood Education
• NAEYC (National Association for the Education of Young Children)
• Parenting Babies and Toddlers
• NCCP (National Center for Children in Poverty)
• UCLA School Mental Health Project
• National Maternal and Child Health Clearinghouse Home Page
• ISEI (International Society on Early Intervention)
  framework and forum for Early Intervention professionals around the world
• Kidshealth
• Developmental Delay Resources
  Disseminating information about causes and interventions for developmental delays, through our quarterly newsletter, workshops, conferences, library and website, as well as selling books and tapes,
  Connecting families, professionals, and organizations through our membership directory and extensive database and,
  Preventing developmental delays through education.
• ERIC Clearinghouse on Disabilities and Gifted Education
• NCPSE (National Clearinghouse for Professions in Special Education - Early Intervention and Education for Children with Disabilities)
• Harriet Lane Links
  Pediatric resources
• NICHCY (National Information Center for Children and Youth with Disabilities)
  Also, take a look at their State Resource Sheets to find more info on disability related resources in your area.
• CEC (Council for Exceptional Children)
  Professional organization in Special Education
• Medical Ethics Resources
• Special Needs Project
  online bookstore with books related to special needs
• American Psychiatric Association
• NIMH (National Institute of Mental Health)
• NMHA (National Mental Health Association)
• Child Neurology
• NINDS (National Institute of Neurological Disorders and Stroke)
• NARIC (National Rehabilitation Information Center)
• Brainnet
• BC Ministry of Education - Special Programs: Special Education
  very good: Resource Guides for Educators:
• WAIMH (World Association for Infant Mental Health)
  
• Four-Fold Fathering
• Family Village
  a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
• NAMI (National Alliance for the Mentally Ill)
• Family Voices Home Page
  a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
• National Institute on Early Childhood Development and Education
• Calendar of Education Conferences and Education Organizations in California and the U.S.
• IRSC (Internet Resources Special Children)
  Lots of links, including support groups
• The Child & Family WebGuide
  describes and evaluates web sites that contain research-based information about child development.